Implantable Cardioverter Defibrillator
Affiliated to the British Heart Foundation
The forty-fourth meeting of the West Dorset
ICD Support Group for ICD patients and carers was held at The Dorford Centre, Dorchester on Thursday,
17th January 2019.
Attendance: 27 members,
comprising Committee members, patients and carers, and an Arrhythmia Specialist Nurse.
were received from: Terry Hopkins, Paddy Lynch, Brenda Newell and Liz Clark.
Group Chair Sharon Bourgucci opened the meeting and thanked everyone
for attending, especially those members who were attending for the first time. She then introduced our speaker for the morning,
who was Kate Travers, Clinical Pharmacy Manager at Dorset County Hospital.
Presentation: Kate began the session by saying she intended to cover medicines used for heart conditions,
the various categories of drugs, what they were used for specifically, the common drugs used within each category in Dorset,
what factors might recommend or inhibit their use in particular patients, common side effects and possible alternatives.
The categories of drugs covered were as follows:
After a comprehensive and detailed presentation, members of the group were invited to ask questions. In answer
to a question as what factors determined whether a particular drug would be used in Dorset, Kate said that the decision would
be based on a variety of factors, including the efficacy of a particular drug, whether it has better performance and outcomes
than another similar drug, and relative cost. There were national guidelines to aid such decisions, as well as a large amount
of information in respect of studies and audits that had been undertaken for each drug available.
Sharon thanked Kate for a most interesting and informative presentation, and gave Kate a small gift on behalf
of the group. Those present showed their appreciation with a round of applause.
Group Business Matters
Annual General Meeting
July meeting attendance
Sharon opened the AGM by introducing the various members of the committee. She said that each current member of the
committee was willing to carry on in their current capacity for another year. A show of hands of those present confirmed unanimously
the group’s support for this proposal. No new nominations for additional committee members were received. Sharon said
that Peggy Hawkins had agreed to assist the committee by providing an independent overview of the accounts of the group. The
members of the committee, Peggy and Carol Denton (who took subscriptions and quiz money at each meeting, as well as noting
attendance and various other support duties) were thanked for their efforts in 2018/19, and the group gave them a round of
Sharon said we had had a very good and enjoyable programme of events
in 2018/19, and the committee had arranged a full programme for the year to come, starting in April with Dr T Edwards, Consultant
Cardiologist giving a presentation.
Alan Denton, Group Secretary told members present that there were
now 40 patient members of the group, plus friends, family and carers. During the year the requirements of the GDPR data regulations
had required each member to confirm they wished to continue in membership and they were happy to have their contact details
stored on a secure database. Alan said he only had details for patient members at present, but if anyone else eligible for
membership would like to have their details held in their own right (enabling them to receive correspondence from the secretary
independently) they should let him know and complete a membership details form (available from Alan Denton).
The committee had been updating the group’s constitution, and Alan explained some of the tweaks that
had been made. By a show of hands it was agreed unanimously to adopt the revised constitution, which would now be posted on
the group’s website.
Jacqui Down, Group Treasurer told the group that she had adopted
a different format for presenting the group’s income and expenditure over the last period. She said the account was
for the period November 2017 to December 2018, as that was the period when bank statements were available to support the figures.
The figures showed that although expenditure had been greater than income there was still a healthy balance at the end of
the year of £1,887.05. Peggy Hawkings had scrutinised the documents supporting this account and she declared herself
satisfied that they were a true record. The income and expenditure account was agreed. Jacqui said that the venue for the
meetings had been sponsored during the year by Boston Scientific, and Medtronic were sponsoring the venue for 2019/20 from
the April meeting onwards.
AOB An email had been received by the committee from an organisation
called St Bernard Support (SBS), a charity that provides support and services to help people affected by illnesses such as
cancer, heart disease etc.
SBS is hosting free online webinars on financial wellbeing matters
for people with cancer and other illnesses, their families and their carers. These sessions (there are four in total) cover
Welfare Benefits; Insurances; Pensions; Wills, Trusts & Lasting Powers of Attorney. They last about one hour
each, cover a range of financial wellbeing subjects and are specifically tailored to the requirements of people with life
affecting illnesses. A variety of dates are available throughout the year. If you would like more details of the sessions,
please contact Alan Denton and he will forward the details on. Alternatively, email to email@example.com to receive the instructions to
access the webinars. NB: The WDICDSG does not endorse or recommend any particular organisation, and these
details are provided for information only.
A quiz of the year, supplied and run by Tony Downs, resulted in
a number of prize-winners.
Further meetings for 2019/20 are as follows:
Thursday, 4th April 2019: Dr T Edwards, Consultant Cardiologist, DCH – latest research/update
Thursday, 18th July 2019: Presentation by British Red Cross: Everyday first aid
Thursday, 13th October 2019: Andrea Podmore, Cardiac Rehabilitation Nurse – healthy living
(focus on diet and exercise)
Thursday, 16th January 2020: the history of the Shire
Hall and its development into a Museum and local tourist attraction
Date of next meeting The
next meeting will be on Thursday,
4th April 2019: Dr T Edwards, Consultant Cardiologist, DCH – latest research/update